Are there privacy concerns related to posting an individual’s genome-wide genotype data on GAIN Database within dbGaP, since it is a publicly accessible database?
Genotype data will be posted to the GAIN Database within dbGaP if, and only if, existing consent within GAIN-selected studies is deemed adequate by the responsible institution for open public access to genetic information. The individual genotype data that meet this strict criterion will be posted to the GAIN Database within dbGaP without links to any identifying phenotypic information. Therefore, identifying an individual in these limited cases based on GAIN genotype data will require matching those genotypes to another genotype database that retains a link to personal identifiers–and such a linkage is very unlikely.
Related Questions
- Are there privacy concerns related to posting an individual’s genome-wide genotype data on GAIN Database within dbGaP, since it is a publicly accessible database?
- Weve concerns over data privacy with regards to putting reports online. Is the software secure?
- How quickly will genotype data from a selected project be posted to the GAIN Database?
