As an Amyloidosis survivor, should I pursue getting proper follow-up care?
Amyloidosis survivors require customized follow-up care for years, but many of them may not be getting it. According a major cancer study, they are calling for a “survivorship plan” to guide every patient’s future health care. The same is true for amyloidosis patients. When treatment ends, people with this condition, the requirement for special needs may be just beginning. Yet the physical, psychological and social consequences have largely been ignored by doctors, researchers, even patient-advocacy groups, often leaving survivors unaware of simmering health risks or struggling to manage them on their own, according to the Institute of Medicine. Successful amyloidosis care doesn’t end when patients walk out the door after completion of their initial treatments. These are some of the recommendations by the Institute of Medicine, chartered by Congress to advise the government on medical matters: Every patient completing treatment should be given a customized “survivorship care plan” to g
