Does the Lupus Foundation have any recommendations regarding alternative and unproven treatments that are often advertised?
The LFA is frequently asked about alternative therapies for the treatment of lupus. Although we remain hopeful that newer more effective therapies will be developed, we must be cautious regarding products that have not been approved by the Food and Drug Administration (FDA). Unsubstantiated Remedies It is the policy of the Lupus Foundation of America not to make recommendations concerning medications or products that have not been approved by the FDA or the American College of Rheumatology (ACR) for the treatment of lupus. In addition the ACR does not endorse nor warrant any commercial product or service. There is a wealth of information and data available about approved medications and products which help guide physicians in making recommendations to their patients. Remedies that have not undergone the scrutiny of scientific investigation, lack the crucial information and data necessary to enable physicians to make sound recommendations regarding substances. Evaluation of medications/
The LFA is frequently asked about alternative therapies for the treatment of lupus. Although we remain hopeful that newer more effective therapies will be developed, we must be cautious regarding products that have not been approved by the Food and Drug Administration (FDA). The following organizations may have information about alternative therapies or products. **NOTE~ www.LupusMCTD.com does not endorse any products mentioned National Institutes of Health National Center for Complementary and Alternative Medicine Phone: 888-644-6226 http://nccam.nih.gov/ Food and Drug Administration Office of Dietary Supplements Phone: 301-827-6242 http://www.fda.gov United States Pharmacopeia 12601 Twinbrook Parkway Rockville, MD 20852 Phone: 301-881-0666 http://www.usp.org/ RESEARCH NIAMS Registries for Lupus and Lupus Related Conditions Lupus Registry and Repository In early 1996, the NIAMS established the Lupus Registry and Repository to study people with lupus, and their families in order to ide
