Does the March of Dimes support research on fragile X syndrome?
Two March of Dimes research grantees are currently investigating how loss of the protein made by the fragile X gene causes mental retardation and other features of the syndrome. Another is studying the speech and language problems associated with fragile X syndrome to develop improved forms of speech therapy for affected children. Where can a family get additional information on fragile X syndrome? For additional information, a family can contact: The National Fragile X Foundation 1-800-688-8765 FRAXA Research Foundation 978-462-1866 References American College of Medical Genetics. Fragile X Syndrome: Diagnostic and Carrier Testing . Policy Statement, July 28, 1994, accessed 4/17/03. Crawford, D. FMR1 and the Fragile X Syndrome: Factsheet . Centers for Disease Control and Prevention, Human Genome Epidemiology Network, July 2001. FRAXA Research Foundation . About Fragile X. Accessed 4/21/03. Hatton, D., et al. Problem Behavior in Boys with Fragile X Syndrome. American Journal of Medical