What is the National Society for Phenylketonuria (NSPKU)?
The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see history. The NSPKU actively promotes the care and treatment for those with PKU and works closely with medical professionals in the UK. It organises conferences and others throughout the UK, publishes a wide range of publications (including food lists) for parents, those with PKU and medical professionals. Events – the NSPKU organises conferences and study days. Local support groups also hold study days and other events. The NSPKU also sponsors medical research into PKU. If you are a new parent of a baby that has just been diagnosed with PKU, we suggest that you follow the link to the What is PKU page before exploring the rest of the site. What’s New?
