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What is the regulatory framework governing genetic testing in Quebec?

April 26, 2017framework Genetic Testing Quebec regulatory

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What is the regulatory framework governing genetic testing in Quebec?

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In Quebec, there are no legal rules specifically addressing genetic testing. However, general legal provisions can apply to genetic testing. • For example, the Civil Code of Quebec contains articles dealing with personal integrity that can apply to genetic testing. • Various organizations have created recommendations concerning genetic testing. For example, the ‘Comité d’éthique de santé publique’ released an opinion in 2007 on genetic testing for recessive hereditary diseases (Avis sur le Projet-pilote d’offre de tests de porteur pour quatre maladies héréditaires récessives au Saguenay-Lac-St-Jean). It states that the identification of carriers, by way of genetic testing, for recessive diseases must have a diagnostic objective. When testing is discussed, as well as when results are communicated, those tested must be well informed about the diseases being tested for. It is important to ensure complete comprehension of the information received.