What rare genetic disorder is Juliana Wetmore afflicted with?

JACKSONVILLE, FL -- Juliana's story is the all-time, most popular story on our website. It's been a year since we've seen Juliana on TV. Her father says, "A lot has happened." It's obvious. Juliana has had four major surgeries in Miami during the last year. Juliana captured many hearts as the little girl who was born without a face. Her parents thought she might have a small deformity. They were totally unprepared for how she looked after birth. She was born missing more than half the bones in her face. It's a genetic disorder called Treacher Collins syndrome. Doctors say she's the most extreme case on record in the world. Her father, Thom Wetmore, says Juliana has had 27 surgeries so far. She goes to Miami next month for another operation. At first Juliana's story may strike you as you totally sad. But the victories this little girl has accomplished can just blow you away. [MORE: JULIANA SAYS 'I LOVE YOU'] She's five now. This year she'll be in kindergarten. She's reading words, ...  more