What is a Leukodystrophy?
The leukodystrophies are genetically determined progressive disorders that affect the brain, spinal cord and peripheral nerves. The term leukodystrophy derives from the Greek words “leuko” meaning white and referring to the white matter of the nervous system and “dystrophy” meaning imperfect growth or development. from www.ulf.org Other leukodystrophies include ALD (Adrenoleukodystrophy), Alexanders Disease, Krabbes disease and several others. They are all severe and most result in childhood death. Jim Kellys, former Buffalo Bills quarterback, son Hunter suffers from Krabbes Disease. Earlier this year, Hunter reached his seventh birthday, which is extremely uncommon for kids with this especially brutal disease.
