The JTSMA is a support group run by parents of children with SMA and adults who have SMA. The main aim of the group is to provide support, information, understanding and friendship to those whose lives are affected by SMA. A quarterly newsletter, “Holding Hands”, is produced, and an annual weekend conference is held offering the opportunity to meet each other and share experiences in a relaxed atmosphere. The Jennifer Trust is open to anyone who comes into contact with SMA. It now has contact with several hundred families, who, between them, have a wealth of experience to share. The Jennifer Trust was founded in 1985 by Anita Macaulay, whose daughter, Jennifer, had severe SMA. JTSMA has an Area Contact Network of people who provide local support and advice and are experienced in SMA and aware of the wider issues. The Trust will be able to give you the name address and phone number of your local contact family in the UK, who should be able to answer many of your questions, offer advice