What are the key international policy positions addressing employers’ access to genetic information?
• The Declaration of Bilbao (1993) proclaims that informed consent is a prerequisite for interference with privacy, unless such interference is carried out under judicial control and for reasons of public interest. • UNESCO’s International Declaration on Human Genetic Data (2003) affirms that “the principles of equality, justice, solidarity and responsibility as well as respect for human dignity, human rights and fundamental freedoms, particularly freedom of thought and expression, including freedom of research, and privacy and security of the person, […] must underlie the collection, processing, use and storage of human genetic data.” Moreover, Article 6(a) specifies that it is “imperative that human genetic data […] be collected, processed, used and stored on the basis of transparent and ethically acceptable procedures.
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