What is a TOT Collar?
A Tubular Orthosis for Torticollis (TOT) Collar is used to treat infants with CMT. Basically, it is a very simple device that is made from soft plastic tubing. This tubing fits around the neck, There are hard plastic pieces that fit in-between the soft tubing on the tort side. They are cut to fit the infants neck so that they hit the base of the skull in certain places. When they tilt their head and hit these harder pieces, it is uncomfortable and they straighten their head. The collar is used for infants who are 4 months or older, show a consistent head tilt of 5 degrees or more. They should already have adequate ROM and have head control. The infant MUST be supervised at all times while wearing the collar. They should wear it only when awake and active. The collar should not be used on a child in a car seat. We have found through member experiences that the TOT is easiest to use and most effective right after a child begins sitting and can be used until they are walking! The TOT shou
