Who will have access to the information about my brain and the post mortem examination?
At the time the brain is received, it is assigned a unique identifying number. Only qualified staff has access to post mortem information. When researchers obtain brain tissue, only the unique code number identifies it. Family names are not included. When donors sign up for the program, they identify a next of kin who will be mailed a copy of the post mortem autopsy examination report. This information may be very useful if other family members are diagnosed with neurological disorders.