Why are we studying spina bifida?
Children and teenagers with spina bifida face a variety of issues in their daily lives that, at times, can be challenging for them (as well as their families) to manage. Through our research study, we are trying to better understand ways in which families cope with these issues, as well as ways in which medical professionals, psychologists, and professional organizations might be able to assist families. The information that we obtain from you is used in presentations at psychology conferences, and in meetings with doctors, nurses, and other health care professionals to improve the services provided to children and adolescents with spina bifida, and to help you and others obtain the support and resources you may need.
